Author Topic: Dementia village  (Read 2593 times)

Nearly Sane

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Dementia village
« on: January 29, 2016, 03:23:34 PM »

floo

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Re: Dementia village
« Reply #1 on: January 29, 2016, 03:37:52 PM »
A brilliant idea, but I can't see the UK adopting it though!

ekim

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Re: Dementia village
« Reply #2 on: January 29, 2016, 04:41:02 PM »
They had one of those villages in Wales .... Portmeirion .... "I am not a number".... from 'The Prisoner'.

Hope

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Re: Dementia village
« Reply #3 on: January 29, 2016, 06:10:03 PM »
They had one of those villages in Wales .... Portmeirion .... "I am not a number".... from 'The Prisoner'.
Not that Portmeirion was ever a dementia village, ekim   ;)

The other thing that several other countries have are retirement villages - very popular in Australia, for instance.  You 'join' the village on or soon after retirement, and live in a normal house as normal.  As you get older and more infirm, you move through the various levels of care provision until you end up in what is more like a UK nursing home set-up.
Are your, or your friends'/relatives', garages, lofts or sheds full of unused DIY gear, sewing/knitting machines or fabric and haberdashery stuff?

Lists of what is needed and a search engine to find your nearest collector (scroll to bottom for latter) are here:  http://www.twam.uk/donate-tools

OH MY WORLD!

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Re: Dementia village
« Reply #4 on: January 29, 2016, 08:49:04 PM »
Rational moments happen less and less as the dementia progresses. I had to leave the room when they came to assess my father. I went into the kitchen and listened to him not knowing the answer to any question they asked him. I don't know where Rose thinks they should be. Mom and I could no longer handle dad. He was becoming more and more angry at us, and some times threatening. He did strike his roommate at the nursing home. He lived in constant fear, he would go missing in the middle of the night, walking out in his pjs. We had to barricade the doors and I had to sleep on the couch to catch him leaving the house. He would get the notion that my mom was his mom and wouldn't go to bed. I caught him stuffing grass into his mouth. Yes there were clear moments, one of the nurses asked if he was a preacher. Dad would go back to his days as a minister and deliver sermons to the patients and staff. The nurse said he sure knows his stuff when he got to preaching. He had no idea who I was for the last 5yrs of his life. I think my father would have quite liked living in a place like the one in Holland.

Shaker

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Re: Dementia village
« Reply #5 on: January 29, 2016, 08:51:16 PM »
I was going to say the same thing in response to Rose - certainly in the earlier stages of dementia there are lucid, rational episodes of normality but as the condition progresses these become fewer and shorter :(
Pain, or damage, don't end the world. Or despair, or fucking beatings. The world ends when you're dead. Until then, you got more punishment in store. Stand it like a man, and give some back. - Al Swearengen, Deadwood.

Nearly Sane

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Re: Dementia village
« Reply #6 on: January 29, 2016, 09:18:21 PM »
Just to note to Johnny Canoe, while we have not usually seen eye to eye, your post struck a cord. My father was not as bad for that length of time but it sounds familiar. So you have my thoughts with you.

OH MY WORLD!

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Re: Dementia village
« Reply #7 on: January 30, 2016, 02:20:01 PM »
Thanks Mr. Nearly, it was a rough time and it broke our hearts.

Rose,
 One doesn't put a loved one, sinking in dementia, into a care facility out of selfish motives, or shame on them if they do. We couldn't provide the proper round the clock care that dad required for his health and safety any longer. We made the decision that we would do what ever it took to keep mom from going into a care facility.
Nobody wants to be in a nursing home nor a hospital. Being in the hospital is what killed my mother. I was to meet my sister at the hospital to bring my mom home. The phone rang and it was my sister almost screaming. She had walked into mom's room and there she was in a chair waiting to go home, the problem was she was not conscious and my sister could not wake her up. She ran yelling for the nurses, they rushed in grabbed hold of mom and put her on a bed and what they did to bring her back was so rough that we believe it drained her of the strength she was shortly to need. Within hours mom caught a super bug and was dead in a few days. We were going to take on too much bringing mom home I think, but I was determined to do it. I had a hospital bed brought in, I had mom's bedroom door and her bathroom door enlarged to make room for the lift. Had it all ready and I had to call them later that week to come pick up that bed.

I think it will be ok, so I want you to look at my mom's obit, and go through the slide show. There are several pictures of dad, but the one I want you to look closely at is him in a wheelchair. That was the last time I brought him home, he could not walk nor talk. A moment of clarity is a price that had to paid by dad to ensure his safety and well being.

http://obits.dignitymemorial.com/dignity-memorial/obituary.aspx?n=Viola-Moodie&lc=3600&pid=155238230&mid=4936834
 

floo

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Re: Dementia village
« Reply #8 on: January 30, 2016, 02:32:54 PM »
My husband's much older brother (82) was put in a care home just before Christmas, his poor wife, also in her 80s, couldn't cope with him any longer. He is totally away with the fairies and doesn't recognise his family any longer. :(

I know my limitations and coping with dementia is one of them, I would definitely put my husband in a home if he was unfortunate enough to have dementia as well as the brain damage he suffered after his subarachnoid haemorrhage. I know for a fact that if I go down the dementia route I would have to go into a care home, I would not want my kids to have to put up with me in that state.

OH MY WORLD!

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Re: Dementia village
« Reply #9 on: January 30, 2016, 03:25:15 PM »
I get that Rose. But when we finally gave in and took dad to the care facility, his moments of clarity were few. Once after he had been there about a week, he told mom that he feels that she has abandoned him. That broke her heart, she was there visiting him 6 days a week.

Unfortunately I have to tell you to kinda get over it, for your families sake. I promise you, that should it happen to you, they will eventually put you in a care facility. Don't make the guilt that they will feel that much harder. If and when the time comes, your moments of being real will be few if any.
Now there were moments of laughter even when dad was in his dementia. I had put a roast on the counter and went outside. I came back about an hour later and it was gone. I looked everywhere for it. I asked dad several time what did he do with the roast. I gave up looking and in my frustration I decided to empty the dishwasher. And in the dishwasher was my roast all squeaky clean.
Mom's sister had it and one day she came downstairs and went into the kitchen where her two daughters were. She asked them who the old man was sitting in the living room. They told my aunt that he was her husband. So she crept back down the hall and peeked around the corner and stared at my uncle for a bit. She came back and told her girls that he wasn't her type. On one of mom's visits with her she told mom that the girls make her sleep with an old man every night. And she added, "we don't do anything, nothing happens".

OH MY WORLD!

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Re: Dementia village
« Reply #10 on: January 30, 2016, 03:31:13 PM »
I must also say that care facilities aren't 100%. But after several years now I can take a more unbiased look at it. You see, at the time we were all very emotionally charged. One sister especially would go off when she felt the nursing staff was lacking in their care for dad. But I have to say they did their best, even if that wasn't 100% at all times in our view in those very emotional years.

floo

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Re: Dementia village
« Reply #11 on: January 30, 2016, 03:36:59 PM »
My mother had dementia towards the end of her life. There was no way on earth my siblings and I could have coped with her in our own homes, she was always difficult even before the dementia set in. :o My poor father checked himself into a care home to get away from her! Of course we ensured mother had the best of care homes where the staff were brilliant.

OH MY WORLD!

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Re: Dementia village
« Reply #12 on: January 30, 2016, 03:42:08 PM »
I over reacted some Rose. Sorry

Bubbles

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Re: Dementia village
« Reply #13 on: January 30, 2016, 03:48:07 PM »
I over reacted some Rose. Sorry

No you have nothing to apologise for.
You just pointed out a few valid points, nothing wrong in that :)


I jumped in with both feet, not thinking of those that have had to make some difficult and painful decisions themselves.

:[



I do that now and again.

Every so often it doesn't hurt for me to face that, because sometimes I don't think, before sounding off about something.

Nothing you said was out of the way, and I suspect those who have had to deal with it, would back you up :)



« Last Edit: January 30, 2016, 03:49:38 PM by Rose »

ippy

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Re: Dementia village
« Reply #14 on: January 30, 2016, 05:23:48 PM »
Looks pretty reasonable to me, it has to be worth a try, I can't see that it would do any harm even if it doesn't deliver.

ippy